Autism and Expectations


Did you ever let the whole world in

With a thought?

Were you ever told that one wave on the beach

Was the important one

And though you tried to catch it

It was drowned in the crashes and splashes

All around?

Autism isn’t separate and distant,

It’s a connection to everything;

The birdsong, the engine, the beams and the crackles.

You try to contain our love to just people.

You try to chain it, restrict it, explain it.

You live on a one-wave beach,

Neat and tidy, with carefully placed seashells.

I live in a tempest.

The sea roars, the wind whips, the sun shines rainbows through the vapour-mist.

There is no order,

Each sense demands no border.

There is passion

And fascination

And procrastination

Caught in the curve of a rolling wave.

Nothing is neat and tidy

Everything is movement.

I learned to drown out and focus.

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Autism Poetry

A lovely poem 🙂

Autism and Expectations

I always struggle to write poetry specifically about autism. How do you write about a process? You end up bogged down in the behaviours that result from it, instead of the thing you were trying to focus on.

These are last night’s headscribbles. I hope you enjoy them.

When I try to write

About the autistic

My brain slips.

Because it isn’t in the eye

Or the ear;

It’s the bit between there and here.

The interlocking process,

The wandering thoughts,

It’s the aggravation at derailment,

It’s the creased brow,

It’s the losing the thread in the billions of threads

But finding yours in seconds,

It’s the cleanness of honesty,

And the curled lip at deception,

It’s the spoon that dips in and scoops out the words,

It’s the taste of wood sorrel,

It’s following a bumble bee,

It’s putting all the pieces together in an instant

But not knowing…

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Depathologizing Asperger’s / autism ~ Out-voicing the autism ‘experts’

the silent wave

Ever since the advent of the internet and the proliferation of websites of information on just about any topic imaginable, it seems as though Everyone’s An Expert.

This seems to apply especially to the Asperger’s/autism spectrum.

These self-proclaimed “experts” generally fall into one (or more) of four camps:

  • The majority of (hint: not all) scientific researchers and medical/mental health professionals who study or work with people on the autism spectrum, and/or
  • The subset of (hint: not all) parents, caregivers, and educators of autistic people (the specific warrior/martyr-like subset being referred to from here on as the Autism Moms/Dads/Parents(TM) as described here (link to “The ‘BS’ Fairy’ blog; Rated R for language)
  • The subset of (hint: not all) advocacy organizations whose “advocacy” is mostly unproductive and undesired by Asperger’s/autistic people ourselves
  • The media outlets (be they internet portals of “inspiration p*rn”, Hollywood movies, headline news, etc) reporting on stories involving Asperger’s/autistic…

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April and Accuracy

Eclectic Autistic

I think one reason April (at least in its guise as Autism Awareness Month) is so stressful and aggravating for autistic people is the sheer amount of mis-/disinformation bandied about: since many of us like things to be correct, we feel the need to correct it. This often leads to friction, because, well, people don’t like to be corrected, even politely. Beyond that, I think there is often a mismatch in the intent of communication when it occurs between autistics and allistics.

I realize I’m generalizing here, but this is a fairly common trait; I think it’s one reason why autistic people are often said to “take things literally.” (But we could just as easily call it an allistic failure to say what they mean and/or mean what they say.) When someone says something, autistics tend to see it as an informational statement, and evaluate it as such. But for…

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Yeah I’m walking for autism 

the silent wave

One almost can’t run a basic Google search for the word “autism”, especially in April, without practically tripping over websites that urgently suggest that the visitor “Walk for Autism” and “Find a Walk Near You”.

The goal, of course, is to raise funding, which will most likely be allocated toward efforts like “cure” and “prevention”, to fulfill the dream of ensuring that people like us no longer exist…or maybe the goal is a new Bentley, but who’s watching (?).

As a result, the hearts of many people on the Asperger’s/autism spectrum sink just a little during the month of April, which is both saddening and needless. Nobody deserves to feel like that.

Here is my response to those efforts made by those organizations…

I’m walking for autism, alright. I’m walking for my autism. I’m also walking for any other autistic person who might need (or could use) the support. 🙂

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Autism ‘awareness’ is not enough 

the silent wave

Welcome to the 2017 edition of Autism “Awareness” Month (heh).  This month, I will probably reveal my Activist Face a bit <grin>.  I’ll try to keep The Feisty to a minimum, and logic and bride-building at the control panel, although there may be times when I get a little…impassioned. 🙂

…Especially when talking about Autism “awareness” Month, and Autism “awareness” itself.

All over the globe, various people will parrot these words, probably hundreds of thousands of times over.  But I dare say that they probably don’t know what they’re really talking about.  The vast majority of them may not realize that they’re missing the point.

April is often a time of depression for those of us on the Asperger’s/autism spectrum, for these very reasons.  Because “awareness” is not trueAwareness.  The way in which this “awareness” is carried out can be detrimental to our wellbeing, for we are constantly…

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