Autistic resilience: talking up competence.

The other side

Version 2(Work in progress on the theme of resilience, © Sonia Bouè 2017)

This week has been rocky. I want to talk about anxiety.

Anxieties collide sometimes don’t they? Stuff can accumulate and escalate. World events, a health glitch, a seriously upset neurotypical (NT) friend.

(For the sake of clarity. I should stress here that my friend was not upset with me but rather shared their distress with me).

For an autistic person this can rapidly begin to feel ‘disproportionately’ dark.

What I mean is that for autistics the confluence of events within a short time frame is often what proves disorientating, and I’m trying to analyse the cause. I think that probably some of our anxieties are related to what I think of as imperfect information in the moment. I find this a useful phrase when applied to autistic styles of perception in a neurologically  biased  world. It’s the difference…

View original post 559 more words

Advertisements

How to help an Autistic

Yes. THIS.

Autism and Expectations

Last year I was sent this wonderful Ted Talk to listen to. I wasn’t sure of its relevance at first, but it soon became clear.

Here it is, well worth a watch:Ernesto Sirolli: Want to help someone? Shut up and listen

It got me thinking about so many of my problems, and they are all based in connections. They are all based between me and others.

The Ted Talk is about being an NGO in Africa, not about Autism or disability, but the comparisons are stark.

The way that our Western eyes viewed Africa as either Patronising or Paternalistic… that’s how people view disabilities too.

The way those who want to help wander around trying to come up with solutions, without asking the communities they are trying to help… that’s how people have traditionally approached helping people with Autism.

Over and over again what Ernesto says strikes a chord…

View original post 985 more words

To an autistic girl

The Misadventures of Mama Pineapple

My dear, wonderful girl

You had a feeling you were different. And now you know for sure. Your brain works a little differently from those of many people around you. And at times, you don’t know what to make of that.

Does it change anything, or does it change nothing?

You’ve been given this label. You’re autistic, or you “have autism” (I’m going to use the first of these phrases from now on, but you might have heard it referred to the second way in the past).

Perhaps you’ve known about it as long as you can remember. Perhaps your family recently told you about it. Or perhaps you’ve just been given your diagnosis firsthand.

But it may not have been the only label you’ve been given.

Childish. Away with the fairies. Lost in her own world. Space cadet. Scatterbrained.

Bookish. Shy. Nerdy. Geeky. Weird. Kooky. Quirky. Eccentric. Odd.

Naughty…

View original post 1,085 more words

A foreign country and a bloodhound brain #autism

“…we can no longer take many of our fundamental rights for granted. In truth disabled people NEVER could.”

The other side

img_8675I wake up and I am in a foreign country.

I am not the same shape I used to be. Literally I am heavier – when for decades I was almost too light. Fearing perhaps to occupy too much space. Now I am more certain (though still hovering) and there is more of me it seems.

But this is not the only change.

Each day I wake and stumble to my laptop. News. Views. News.

Click…click…click.

Are we near to armageddon? How near?

I follow trails – endless trails, down endless rabbit holes it seems, which echo with endless bile and all that political chatter. Not idle. No. But quite quite mountainous.

And yet my ‘unusual brain’ (a bloodhound of sorts) hunts on (and on). Seeking patterns to arrive at meanings. This time predicated on fear.

This is what I do. What I was born to do. With a thirst…

View original post 354 more words

Wrong Model, Wrong Research

Eclectic Autistic

I was going to write a long, detailed post directed at MIT about their announcement of a new Center for Autism Research, which will be focused on lifting the “burden” of autism and developing “methods to better detect and potentially prevent autism spectrum disorders entirely.”

I was going to talk about how, scientifically, any approach to a complex problem requires using the correct model, and explain that I think they’re using the wrong model of autism — a pathology model rather than a neurodiversity model. I was going to pull quotes from articles about this new center (as well as the existing autism research going on at MIT, which is already along the same lines) and contrast them with quotes from MIT’s president about inclusion and respect for students of all backgrounds.

But I’m just tired of it all.

I understand that our whole society pathologizes difference: there are…

View original post 457 more words

70 of the absolute BEST #ActuallyAutistic blog posts I’ve ever read (300th post)

This is #Ausome!! 😘❤

the silent wave

In the very first post on this blog and on my currently-pinned Twitter tweet, I state that “The Silent Wave”, on a grander scale, is not about me; it’s about all of us (especially those of us who are either recently diagnosed or otherwise adult-diagnosed on the Asperger’s/autism spectrum), as we find ourselves and chart a new route through the waters of life.

In my attempt to live up to that statement not just by saying it, but by following through with evidential action, I’ve tried to start a little informal tradition in which, every hundredth post or so, I write a post that hands over the megaphone from my loud mouth to the well-deserving voices.  These commemorative posts have actually become my favorite ones to write!

Today, for my 300th post, I’d like to celebrate (oh god, there’s so much to celebrate–the community, the feedback, the cohesion, the variance…

View original post 1,240 more words